Thanks Cognoscenti! I had never heard of that and will text it to my doc right now. We are looking to test anything at this point and they are just as puzzled as I am.
Pheochromocytoma = A pheochromocytoma (fe-o-kro-mo-si-TOE-muh) is a rare, usually noncancerous (benign) tumor that develops in the core of an adrenal gland. You have two adrenal glands, one just above each of your kidneys. Your adrenal glands produce hormones that give instructions to virtually every organ and tissue in your body.
If you have a pheochromocytoma, your adrenal glands can produce too much of certain hormones, raising your blood pressure and heart rate. A pheochromocytoma may be life-threatening if unrecognized or untreated.
A pheochromocytoma can develop at any age, but most commonly occurs in middle age. Usually, treatment for pheochromocytoma can return blood pressure to normal.
WOW! I actually think there may be something to this. When I had my gallbladder removed last September, during the scans they said they saw a small benign lump on one of my kidneys, but that it was nothing to worry about.
Cognoscenti wrote:Sorry for your troubles Spock, and not to worry you, but you might ask your docs to check you for a pheochromocytoma, a rare neuroendocrine tumor that can suddenly release a load of adrenalin into your system and result in the symptoms you describe. The screening test is a 24 hour urine collection in which they assay for metabolites of adrenaline called VMA and metanephrines. Good luck
I have to say, after looking at this, it is the absolute closest thing I have ever seen to describing what I am going through. I am having a text chat with my Doctor right now. Everything, even the blurred vision. Even a few months ago I had a spell and momentarily blacked out at work, was taken to an Urgent Care center and nothing showed in the test - we attributed it to a gastro problem doing something with the vegus nerve. Although, symptoms for this even cover that outbreak.
As well, when I had a CT scan on my guts recently, I was told I had a small benign cyst on one of my kidneys but that it was nothing to worry about.
I am SO grateful you popped into this thread - I have another appointment tomorrow and will start down this path and report back.
I'm blown away!
Rachelwordsmith wrote: I'm a comparative religions, anthropology, history geek and atheist with a lot to say based on untenable facts
Below are titles of videos that can be viewed using Youtube on the internet:
William Davis - Wheat: The UNhealthy Whole Grain
Sugar: The Bitter Truth
Samantha Bachman Interviews Don Tolman "The human body is full of tubes."
Andrew Norton Webber-First ever UK Distilled Waters Conference
The Case Against Fluoride, Paul Connett in New Zealand 22Feb2013
DarkHeart wrote:I thought this might be of interest to anyone reading this thread
Boy do I have some stories about all that! The only thing left out was the shaman! lol
So, I had an appointment with my psych yesterday and I printed out the full report about "Pheochromocytoma" to take with me. On the way to the appointment, I had another attack, and had to call 911 and wait for the ambulance in a store parking lot. This is the scariest thing I have ever gone through. I know what panic and anxiety attacks feel like, and I am telling my doctors that after 20 years, these last 2 episodes are far worse than anything I have ever experienced. When the medics got there, my heart rate was elevated, but within 10 minutes I was back to normal, so the entire episode lasted about 20 minutes and I was able to continue on to my appointment - believe me, I would not just call an ambulance unless I thought I was on the verge of death. And again, I was anxious about NOTHING when it hit, I felt it start, took about 10 to 15 minutes of a sense of adrenaline, then in a split second my heart speed up and went into palpitations.
The good thing about it was, maybe a blessing in disguise, was that I was actually wearing a halter monitor while this happened, so the entire thing was recorded, and I am anxious to get these results back.
My psych has ordered me the test for Pheochromocytoma (24 hour urine test) as well as and Electroencephalogram (EEG) for possible Temporal Lobe Epilepsy - although he thinks I have neither and this is 100% anxiety, but is willing to rule it out - the psychologist, on the other hand, believes it could possibly be one of the 2, so even though I feel I have great doctors working with each other, I also get the feeling there is a bit of ego involved in their positions. My psych seemed to take personal offense that I was accepted into the Duke study, making mention that he attended and worked at Duke and could do the same studies - however, I would not get his full attention in a specialized category of research.
Anyway, so now I've been prescribe Klonopin twice a day, and Xanax as needed.
I'm a little nervous about the Klonopin, not necessarily the effects, but the addiction which comes with it - there are horror stories about coming off of Klonopin. On the other hand, if I had to choose to live with these attacks, or stay on klonopin, addicted or not, I would choose the addiction every time.
These syndromes are all related and have one underlying cause: diet. No medical doctor will tell you this.
Those two people I mentioned are perfectly healthy today after going on a raw vegan diet, as prescribed by the Hippocrates Institute for Health in Florida. One of them ran a marathon last year and, three years prior to that, could not get out of bed.
Diet is the key to health but people have to give up their addictions to animal products, sugar, etc. This is very difficult to do and I have known people that chose death instead of changing their diet. Make no mistake, unhealthy foods are an addiction, so it takes a lot of support to change this part of ones lifestyle.
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